Comments

238.→Husband Journey: Big Steps (16. With a Touch of Migraine) — 17 Comments

  1. Where in the world can I find the words to express how I feel after reading this. I want to cry, rage, and scream on behalf of you and Robert. Even though we have never met in person I have such a sense of knowing you. You are an online friend that was also a special ed teacher, an animal lover, a poet, a mother, wife and daughter. I feel privileged to have shared your life through writing, sadly my hug has to be virtual. Thank you for sharing photos, now I can see the people I think about. As always prayers for you and your family
    Love to you,
    Valorie

  2. Shers Gallagher
    You look like Goldie Hawn in that picture of you two in Venice. So touchingly painful, poignantly painful, all this, Susan. You as a writer describe it so well, the bittersweet hell of slowly watching and waiting for the soul you love as he quietly slips away. Coupled with this was another of those damnable migraines. Of all times! And Robert getting Covid? Holy hell!
    My favourite line of yours: ‘He, like my future, had to be faced.’
    You are so courageous…my hero…xoxo

  3. Sue dear, thank you for your courage, strength and intellect! You inspire me in the way you keep the essence, the soul of Robert alive and celebrated, even in his lost place.
    His remarkable life shines through because of your remarkable engagements and writings. My heart and love are with you and with Robert to help ease the pain.
    Much love,
    Gail

  4. My heart breaks for both of you. Words fail me. You are so strong. As I read, I was transported back to my mother in law and our journey with her and her battle with alzheimers. Such a brutal disease. I’m so sorry. You are in my thoughts and prayers.

  5. I’m happy that he recognized you and his sister’s voice and it sounds like they have been taking good care of him. Will you be able to visit again anytime soon?

  6. Terrifying, tortorous and traumatic. Yet you carry on and give voice to those who can no longer speak. Few would be able to endure all with which you have done and continue to do battle. I’m so glad Wendy and Robert have been able to speak however briefly.

  7. Sue…I can feel the spinning, like an ocular migraine, through this exquisitely lonely heartbreak. I hope your writing, and the witness of the people who read your words, are a buoy in these tumultuous seas of grief. Sending you love♥️

  8. Hi there, well you definitely handled that well. I don’t know if I could have done that well. I’m so proud of you. Style and grace come to mind. Did they arrange for another visit? I’m sure the anxiety of it all is taking a mental toll.
    Remember just breathe. You got this !!!!!

  9. You are heroic dear Sue. I am so sorry for Robert and you. I am glad he was able to express his love to you and his sister. I wish you strength, good health and peace. love. ❤️ Your ‘ lainie

  10. Keeping in contact with people we love as they slip side away is never easier. That much harder in the separation enforced by Covid-19 restrictions. My sister is leaving me one small step at a time but so close together. I am thrilled she does not have a brain tumor but her connection to this world is less as her disease progresses.

    My heart is with you on this difficult journey you didn’t want to take.

  11. I have tears in my eyes for Robert and for you. And I have hate in my heart for covid. Sending you love and strength! ((hugs)) ❤️🙏❤️

  12. My heart is full for you and for Robert. Tears fall for you both and for Ethan. I walk and pray with you now as I did during your journey with your mother. You have had too much pain in your life for so long and I pray you find a release from the present pain both physically and mentally. Know that we care x

  13. Words fail me after reading this blog. I know personally about Alzheimer’s and feel for you. I hope you are finding help for yourself,sounds like your son is helping you.💕

    • Dave Wise on Apr. 24 at 8:23 pm.
      So sorry to hear of all the pain for both of you. This is tragic. Stay strong and never hesitate to reach out.

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