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Cerebral Jukebox Magazine

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Tag Archives: husband

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248.→Husband Journey: Going

Cerebral Jukebox Magazine Posted on June 28, 2021 by Sans SouciJuly 11, 2021

Just to tell you. Robert is eating less than 50% of what is served, and sometimes nothing at all. The facility wanted to send him to the ER for hospital admission for a feeding tube. It ain’t gonna happen. I told the nurse with a witness on the line: Do Not Resuscitate, Do Not Intubate. No feeding tubes going down the nose and into the stomach. No. No. I repeat: NO. He is on “compassionate care.” He is to be made comfortable. If he wants to eat, he eats. If he doesn’t want to, he doesn’t have to. Give fluids, … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 20 Replies

247.→Husband Journey: Away With Words

Cerebral Jukebox Magazine Posted on June 22, 2021 by Sans SouciJune 23, 2021

photo by Alan Teller I used to be a more prolific writer but lately I have been distracted by all that is going on around me and I thank those friends who have reached out. It has not been easy. But you knew that. As promising as I thought the visit was a few weeks ago, as hopeful as I was that language would be somewhat functional, that is how opposite things are now. Evan and I have had two visits, one has been blogged about in the previous post, and one on Father’s Day.  We brought lovely flowers and … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 9 Replies

246.→Husband Journey: Once Was

Cerebral Jukebox Magazine Posted on June 16, 2021 by Sans SouciJune 22, 2021

    Last Thursday evening was uplifting: it was the C.C.N.Y Alumni Service Award ceremony on Zoom. After the minutes were gone over and approved, six alumni members and two staff members received recognition. Robert was from the oldest class, 1969; his bio was read by another alumni member. I had no idea how the introduction would work and I hadn’t prepared an acceptance speech, so I, a speech major, did it on the fly, and augmented the bio which was based on Dalton’s nomination for the Architecture School Award. I went on to speak about Robert’s incredible amount of … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 9 Replies

245.→Husband Journey: Air Conditioning

Cerebral Jukebox Magazine Posted on June 7, 2021 by Sans SouciJune 17, 2021

    I hadn’t had a FaceTime visit with Robert  in a week, and yes, I felt bad, but I have appointments and calls and it’s time to take care of my own health. Some big stuff came up that scared me, filled me with dread and a pounding heart and I need to follow up. It’s been very strange since Mercury went into Retrograde. It always happens: Miscommunications, broken stuff, missing stuff, weird stuff going on with electronics. So I will begin my post with the air conditioner story. The bedroom air conditioner might be eight years old and … Continue reading →

Posted in Blog | Tagged air conditioner, husband, husband journey, nursing home | 13 Replies

244.→Husband Journey: Anniversary in a Nursing Home

Cerebral Jukebox Magazine Posted on May 31, 2021 by Sans SouciJune 8, 2021

  May 30, 2021 45th Wedding Anniversary My day began with coffee and a sign I didn’t sleep well last night, my mind was racing and thinking ahead, bathed in a sea of heart palpitations and high anxiety. Why was I so uncomfortable? I had the visit well planned: I picked up cookies for the staff and cookies (bite sized) for Robert. He loves those chocolate Quadratinis. I picked up a bouquet of flowers for Robert, for next to his bed, and two more bouquets for the staff, for the reception area and for the nurse’s station. People in the … Continue reading →

Posted in Blog | Tagged anniversary, husband, husband journey, nostalgia, nursing home | 14 Replies

243.→Husband Journey: The Bio

Cerebral Jukebox Magazine Posted on May 24, 2021 by Sans SouciMay 30, 2021

  Still being edited and polished…another update 5/28 One of the last photos I have where he looked healthy. I have been asked by the CCNY Alumni Committee to create a bio and send a photo for the ceremony which will take place on June 10th. I couldn’t keep to the 300 words. Robert is not a 300 word guy. [I read the page to him during a FaceTime call that came in as I was writing. He remained silent with no affect. I eliminated the parts at the end about his health.] Robert was born in the Bronx, NY … Continue reading →

Posted in Blog | Tagged CCNY, honor, husband, husband journey | 4 Replies

242. →Husband Journey: Bread and Brain

Cerebral Jukebox Magazine Posted on May 20, 2021 by Sans SouciMay 24, 2021

    How does one divert oneself when life is tough? Dive into learning a new skill or resurrect an old skill. Focus, yes it is difficult, on something other than the pain that drags you down and makes your stomach quake. Think of pita, ciabatta, loaves  of warmth; some of which might take more than a day to prepare and bake. That keeps you busy. I have been consumed by a recent food section of The New York Times. I bought a bread baking book. I put my hands in flour and wish it was Moroccan sand or a … Continue reading →

Posted in Blog | Tagged dementia, husband, husband journey, nursing home | 6 Replies

241.→Husband Journey: Awards

Cerebral Jukebox Magazine Posted on May 19, 2021 by Sans SouciMay 20, 2021

        Dear Robert: I have the privilege of officially notifying you that the Alumni Service Awards Committee unanimously voted to confer on you the 2021 Alumni Service Award. Congratulations! This award recognizes your ongoing and outstanding service to CCNY and the Alumni Association. This award is presented at our Annual Alumni Meeting – this year scheduled for Thursday, June 10, 2021. Note that this meeting will be held online (via Zoom) due to the continued challenges posed by the coronavirus pandemic. While we are disappointed that we are unable to gather to celebrate in-person, we did not … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 6 Replies

240.→Husband Journey: Visitations

Cerebral Jukebox Magazine Posted on May 16, 2021 by Sans SouciMay 19, 2021

Where have I been over the last two weeks or so? Still requesting, storting, organizing paper. Still going to banks, getting forms signed, signatures verified. And at times, I have had meltdowns. It’s all part of grieving. When you are faced with a loss of any kind, you are spun around and dumped into a chasm of confusion, gobsmacked by life that has just made a surprise attack on the illusion of your well-being. Sometimes well-being isn’t even that. Sometimes well-being is the thought of what is; it is an acceptance of the present. And then there is a surprise … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 9 Replies

239.→Husband Journey: Cinéma Vérité

Cerebral Jukebox Magazine Posted on April 26, 2021 by Sans SouciMay 19, 2021

  Robert and I had an intellectual and artistic connection that brought us to the movies and the theater. We pretty much shunned Hollywood and stuck to the avant-garde, the independent, the thought-provoking. He loved going to the Malverne Theater on Long Island to catch the latest and greatest. The parking was easier there than fighting to survive in Queensat  the sister theater in Kew Gardens. The last time we went was well before Covid and he was able to walk from the parking lot to the theater with a cane. We’d first have lunch at the little diner next … Continue reading →

Posted in Blog | Tagged dementia, husband, husband journey | 4 Replies

238.→Husband Journey: Big Steps (16. With a Touch of Migraine)

Cerebral Jukebox Magazine Posted on April 24, 2021 by Sans SouciJuly 14, 2022

Robert and his sister Wendy ca. 1953     Here I am after over a week’s hiatus facing an empty page. Empty pages are the black holes that absorb my anxiety, thus, the words begin to fill. As Lila says in Elena Ferrante’s book, My Brilliant Friend, I have a bucket of words in my head and I pull them out. This morning I avoided the bucket of words and fell into the bucket of tears. I don’t do that often but it was necessary. As a migraine sufferer who rarely feels pain but has the other mysterious trappings, I … Continue reading →

Posted in Blog | Tagged husband, husband journey, marriage, migraine, migraine vertigo, nursing home, ocular migraine | 17 Replies

237.→Husband Journey: Resurrection

Cerebral Jukebox Magazine Posted on April 9, 2021 by Sans SouciMay 6, 2021

I have spent a good two weeks contacting what felt like endless institutions; about a dozen, in fact. Institutions that have been responsible for banking, retirement, investments, pensions, all that good stuff I never think about on a daily basis if at all: the legalese behind it. The weight of the statements. Five years of statements are needed as part of applying for a nursing home. It’s likely that I had all of these treasures already, but things became disorganized here, more so than I would like to admit, in a household that always gave the illusion of the “everything … Continue reading →

Posted in Blog | Tagged Gustav Mahler, husband, husband journey, mahler, music | 10 Replies

236.→Husband Journey: Where Is home?

Cerebral Jukebox Magazine Posted on April 2, 2021 by Sans SouciApril 9, 2021

  What is a home? It used to be where our family resided, together. Now it is broken and about to be reconfigured. At this time, Robert’s Medicare coverage in the rehab has expired. The statements arrive in the mail, endless papers with printed numbers that sometimes exceed my ability to imagine. Anyone who touches or talks to Robert puts in their dibs. So now what? Let me explain what is happening. Robert cannot come home. He needs equipment to lift him, he needs people to help him. With everything. None of his activities of daily living can be achieved … Continue reading →

Posted in Blog | Tagged health, husband, husband journey, nursing home | 10 Replies

235.→Husband Journey: Ignorance is Bliss

Cerebral Jukebox Magazine Posted on March 25, 2021 by Sans SouciMay 6, 2021

  It all began in March of 2009: we went to a recommended legal team on Queens Boulevard that was recommended by the United Federation of Teachers, aka, The UFT and had important papers put in place: our wills, powers of attorney, health care proxies, etc. We sat in a room and initialed page after page. The documents were signed off and notarized. We received the originals and made a bunch of copies. It was a big chore, an emotionally difficult chore and it was done. The documents were put in a container never to be looked at for years. … Continue reading →

Posted in Blog | Tagged husband, husband journey, mahler | 7 Replies

233.→Husband Journey: The Soda Scheme

Cerebral Jukebox Magazine Posted on March 17, 2021 by Sans SouciMarch 21, 2021

August 1, 2019 Taken at a café in Queens, NY, The French Workshop French Sodas (iPXsMax)   Yesterday I had a nice phone chat with the speech therapist at Robert’s facility. She went and got the things I had mentioned that I had brought and used them; the award letter, the book of art to stimulate conversation. She asked questions, Robert told her that she didn’t have to quiz him. I suppose he knows things are different, that everyone is coming at him with questions, but with questions come tension: he is put on the spot and it is hard … Continue reading →

Posted in Blog | Tagged husband, husband journey | 4 Replies

232. →Husband Journey: Letting Go Of Collections…and People

Cerebral Jukebox Magazine Posted on March 16, 2021 by Sans SouciMarch 17, 2021

Once a saver … letting go…part of the collection I’ve amassed “He cannot be left in the room unattended.” I suppose that since Robert is now out of quarantine, he has joined the ranks of the triaged in rehab. This morning I received a FaceTime call and was linked to Robert who was near a window lined with plants in what seemed to be a large, light-filled room. (turned out to be “the dining room”) We looked at one another. He viewed himself on the screen. He said he looked good. (I cringed.) Of course you do, I said, why … Continue reading →

Posted in Blog | Tagged husband, husband journey | 4 Replies

231. →Husband Journey: 107 to 118

Cerebral Jukebox Magazine Posted on March 13, 2021 by Sans SouciMay 18, 2021

  And so for an update. Robert has been moved up a floor to the second. Apparently he had been in quarantine for two weeks despite his two negative Covid tests at The Hebrew Home: he came from “the outside” and that is the protocol. “Did you know we have to use a Hoyer lift?” said the nurse on duty during a call. So that is what it is. A Hoyer lift, that device for people who can’t move themselves. No, I answered, and I am not surprised. Robert needs TOTAL care. No, he cannot stand, or walk. No, he … Continue reading →

Posted in Blog | Tagged husband, husband journey | 8 Replies

229.→Husband Journey: Home Is Where the Art Is

Cerebral Jukebox Magazine Posted on March 5, 2021 by Sans SouciMarch 21, 2021

I have published a book of Robert’s art works     The Robert update: Well folks, after a talk with the physical therapist, occupational therapist and speech therapist, as well as the social worker, on Thursday, 3/4, all of my observations made from afar were validated and I learned much more. This is, to me, is the saddest of situations: Robert is refusing to participate in physical therapy. He is oppositional to the occupational therapist. The speech therapist, also observes that tight, jaw-clench, facial grimace and growl. Everyone is scratching their heads; they don’t know what to do. Those who … Continue reading →

Posted in Blog | Tagged art, husband, husband journey | 9 Replies

228.→Husband Journey: Let’s Make A Deal

Cerebral Jukebox Magazine Posted on February 27, 2021 by Sans SouciMarch 6, 2021

      This beautiful letter and award from Dalton Whiteside, of CCNY, arrived a few days ago. I asked that it not be sent to him directly as it might get lost. One day I showed him the plaque during a FaceTime call. I could see that he didn’t have the focus to listen to the letter so I waited for another day and then read it to him. “Isn’t that nice?” I asked. He said . “Yes.” But I wondered how much he got out of my reading. Still, I felt he knew it was something good and … Continue reading →

Posted in Blog | Tagged husband | 11 Replies

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