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Cerebral Jukebox Magazine

Susan Kalish on Wordpress.org

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Tag Archives: mother-daughter journey

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Part 43. A New Slant: Reframing the Situation

Cerebral Jukebox Magazine Posted on May 16, 2013 by Sans SouciSeptember 8, 2013

Sometimes we get so stuck within our “frames” of reference that we don’t see beyond it. Yesterday I had an experience that helped me push my parameters and I began to think outside the box; not that I hadn’t jumped out of that box before, but I have been thinking that maybe it will be possible … to bring my mother back to New York. My parents left New York in the early 1980’s for health and financial reasons. My mother had been suffering her whole life from various allergies caused by all kinds of things. She was told to … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 4 Replies

Part 42: A Picture is Worth a Thousand Words; A Word is Worth a Thousand Pictures

Cerebral Jukebox Magazine Posted on May 13, 2013 by Sans SouciSeptember 8, 2013

Mom and Cynthia And so what happened on Sunday after that terrible nightmare I just told you about? I had a long talk with my mother. For most of my adult life my relationship with my mother has been via the telephone. When you have a telephone relationship you are forced to communicate–or not. If you choose not, you are left with shallow, meaningless words that fill time and not you. My mother and I have spoken a lot over the years. It wasn’t always easy. It is not easy now: the walls of time are closing in. I want … Continue reading →

Posted in Blog, Photos | Tagged mother-daughter journey | 9 Replies

Part 41: The Stuff That Dreams Are Made Of

Cerebral Jukebox Magazine Posted on May 12, 2013 by Sans SouciSeptember 8, 2013

One more Mother’s Day. Yesterday morning the bell rang; there was an express mail delivery which contained a Mother’s Day card from my mother’s aide, Cynthia. In it were photos. I had never seen the aide before and I hadn’t seen my mother in a while. It was a surprise–I was startled. I have to say I had a mixed reaction: here is this tiny, frail woman who is still alive, still wants to be alive and is alive because of Cynthia’s perseverance. I recognize her but I don’t, I can’t; it is very bittersweet. When I think of the … Continue reading →

Posted in Blog, Photos | Tagged mother-daughter journey | Leave a reply

Part 40: Will It Go Round In Circles?

Cerebral Jukebox Magazine Posted on May 9, 2013 by Sans SouciJuly 13, 2016

If I could construct a flow chart of a phone call to an elder lawyer today, you would see circles and arrows and if-then’s and more confusion than you’d care to know about. Just envision your shoelaces tied into thousands of knots. That’s what comes to mind. That’s how I feel, like one of a thousand knots. After a bit more than an hour and a half on the phone, I am just as confused as ever. Perhaps I shouldn’t feel that bad―the elder lawyer had no answers either, just one possible recommendation: that my mother be moved to a … Continue reading →

Posted in Blog | Tagged mother-daughter journey | Leave a reply

Part 39: “I Don’t Know How Much Longer I Have”

Cerebral Jukebox Magazine Posted on May 7, 2013 by Sans SouciSeptember 8, 2013

My mother has always been very concerned about her appearance. She would get up at 5:00 am to perform her morning ritual of hair and makeup. Choosing her outfit and accessories was a major event. She had to look perfect in order to go down to breakfast. She finally had her hair done last week. She had not gone to the little beauty parlor in the assisted living since the accident on February 9th. I can’t imagine what that was like, to go so long without having her hair perfect, let alone clean. The aide took her down in a … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 2 Replies

Part 38: Hear No Evil, See No Evil …

Cerebral Jukebox Magazine Posted on May 5, 2013 by Sans SouciSeptember 8, 2013

Thanks, Keith Haring Last Thursday I was supposed to have a phone conference with a Florida elder lawyer in hopes of gaining some insight into my seemingly endless issues. Wouldn’t you know it: she was out sick with laryngitis. The appointment was pushed to next Thursday. I have spent over seven months focusing on my mother and her health, day and night, giving up sleep, food, my peace of mind. I walked around with my stomach in knots, I suffered from strange ocular migraines. In short, I was on the road to doing myself in. A few phone calls ago, … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 6 Replies

Part 37: Whirling Like a Dervish

Cerebral Jukebox Magazine Posted on April 30, 2013 by Sans SouciSeptember 8, 2013

I feel like a whirling dervish: we all know what it feels like to be so confused that our heads spin, literally, the feeling can make us dizzy and nauseous. The flip-flopping, the weighing of choices. It’s overwhelming. I just want to do the right thing, to make my mother comfortable, to keep her out of a nursing home if at all possible. But there are so many if’s. I am going to speak to an elder lawyer in Florida by phone on Thursday. I just need some direction. Whatever I look at, think about, or weigh all ends up … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 6 Replies

Part 36: Paying the Rent, Gritting My Teeth

Cerebral Jukebox Magazine Posted on April 24, 2013 by Sans SouciSeptember 8, 2013

I am so sick of writing checks to this place, I cringe when I take out the check book, what a waste of my mother’s precious funds that are draining like water from a holey bucket. I Wish I knew a lawyer with a big mouth and a mighty pen. There are so few truthful staff members. I just keep encountering one doublespeaker after another. Yesterday there was a rat that came out in the evening. It ate through a box of oatmeal and a PLASTIC container of cookies. A trap was set but it was too big and escaped. … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 3 Replies

Part 35: … and Diffusing Bombs

Cerebral Jukebox Magazine Posted on April 22, 2013 by Sans SouciSeptember 8, 2013

Dealing with my mother’s assisted living Another day, another problem with my mother’s assisted living facility. I feel that everyone who works in that place has several jobs: the one assigned and the one to cover their butts. I contacted an ombudsman who visited my mother and her aide last week so that my mother’s grievances could be aired. That included: rats (I have caught the maintenance guy in lies in regard to the issue of vermin) a broken garbage disposal (promised to be fixed weeks ago) a cracked sink bowl (I doubt they will ever replace this as it … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 8 Replies

Part 34: Untangling a Week of Explosions

Cerebral Jukebox Magazine Posted on April 21, 2013 by Sans SouciSeptember 8, 2013

This past week will go down in my book as being one of the most surreal, odd, and disturbing: The tone was set by the horrific marathon bombings in Boston leaving us in disbelief. The events played out minute by minute by the media and as they unfolded I wanted to ask, “who wrote this story; it surely had to be made up?” It was the strangest five days of ghastly events, lows and highs, from explosions to veritable celebrations once the second of two suspects was captured. And let’s not forget the fertilizer plant in Texas that blew up,  … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 5 Replies

Part 32: Gray Clouds and Tunnels

Cerebral Jukebox Magazine Posted on April 14, 2013 by Sans SouciFebruary 20, 2015

<Play in his puffier youth Here we go again … this poor little guy who I have been injecting twice daily with insulin for diabetes came home and began to sneeze his head off. He’d be OK for a while and then a violent series of CHOO! CHOO! with spray all over. By yesterday, the vet tech’s suggestion that it was an “allergy” didn’t fly and I called the vet to ask what to do. You know what the answer was: “Bring him in.” You know what my response was,”It took an hour and a half to wrestle him in … Continue reading →

Posted in Blog, Photos, Video | Tagged mother-daughter journey | 2 Replies

Part 31: Life in the Eye of a Tornado: Mothers, Dishwashers, Sanctuaries and Sneezing Cats

Cerebral Jukebox Magazine Posted on April 11, 2013 by Sans SouciSeptember 8, 2013

An update on my life in the eye of a tornado … This series of blogs began when I reported that my mother had an accident and went to the hospital, was released to rehab, sent to the ICU back at the hospital, sent to another rehab (we thought was better from the ratings) and was neglected and diminishing daily. She was sent home at my request; rehab wasn’t rehabbing, she was just too weak. She was released to Vitas Hospice care. I thought it was the end. She seems to be rebounding. She currently has someone living-in with her. … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 1 Reply

Part 30: Anxiety du Jour: Escape to: Mekong, Cupcakes, Ebony Hillbillies (felines follow)

Cerebral Jukebox Magazine Posted on April 8, 2013 by Sans SouciFebruary 20, 2015

I am trying to get a hold of my anxieties, corral all the “what-if’s” and put them aside for now. It’s not easy. I am listening two two courses from The Great Courses, on Mindfulness, an Introduction to Meditation, and Stress and Your Body. Now that I know I am capable of doing myself in by worry–which I know intellectually does no one any good, I am trying to do something about it. Death by worry isn’t worth while and anxiety can be so overwhelming, as I am listening to these courses I find I am not alone; there are … Continue reading →

Posted in Blog, Music, Photos, Video | Tagged mother-daughter journey | 7 Replies

Part 25: Life Is A Blur

Cerebral Jukebox Magazine Posted on March 28, 2013 by Sans SouciSeptember 8, 2013

My days have melded, one into the next. The last six months have seemed lost. I don’t recall many details–wait, there was the great kitten rescue from October through December, but for the most part, I feel I have been battered by the endless stress of sorting information, of problem solving, of managing finances, of hiring aides, of standing up to some bullies, of dealing with people who have mastered the art of doublespeak. In the middle of all this, this meaning a phone that is rarely on the hook, of folders of information and data and details and notes … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 2 Replies

Part 24: The Bottom Line

Cerebral Jukebox Magazine Posted on March 22, 2013 by Sans SouciSeptember 8, 2013

   Friday, March 22, 2013 In 2007 I began blogging on Yahoo 360° and within a couple of years the platform closed, likely due to a bottom line: a blog site wasn’t generating enough money. Many of us discovered Multiply.com and we moved en masse and set up home on a great site that allowed us not only to blog, but to message one another, store media and set up creative personal, multimedia sites; it was a mix of social site similar to Facebook but a lot nicer, and blogging site. It was great, but I think as time passed … Continue reading →

Posted in Blog | Tagged mother-daughter journey | 2 Replies

Part 23: On Mothers of All Kinds

Cerebral Jukebox Magazine Posted on March 20, 2013 by Sans SouciSeptember 8, 2013

The family album I made for a birthday; my mother shows it to everyone I was wiped out yesterday after another marathon day on the phone. There was nothing left of me, no words to write, so I will try today, to piece yesterday and today together. I tried to get in touch with my mother’s primary doctor in hopes of her contacting Medicare to request an aide; there was no call back or response to my emails and call; I tried to get in touch with the doctor from the rehab who put my mother on Hospice care but … Continue reading →

Posted in Blog, Photos | Tagged mother-daughter journey | 3 Replies

Part 22: And the Birds Sang

Cerebral Jukebox Magazine Posted on March 18, 2013 by Sans SouciSeptember 8, 2013

I need to document this journey, all the details, please indulge me. My day started with a panic attack and 5:00 am when I realized that for twenty-four hour care in addition to the care offered by Hospice (that can be removed from crisis care at any time leaving my mother unattended on a day’s notice) I will be paying over $8,000 this month and, that is not counting my mother’s close to $3,000 rent. I think the grand plan is that you spend down whatever you worked for over a lifetime so you can go on Medicaid and end … Continue reading →

Posted in Blog, Photos | Tagged mother-daughter journey | 5 Replies

Part 21: On Westerns, Voices, and Trees

Cerebral Jukebox Magazine Posted on March 17, 2013 by Sans SouciSeptember 8, 2013

“we should all be as strong and beautiful as the tree outside my window”   Yesterday was my mother’s ninety-fifth birthday; the sickliest child grew up and outlived three siblings. I still find it amazing. My mother always believed in natural medicine and read extensively about homeopathy and natural cures. She subscribes to several doctors’ newsletters. She would always ask if I took my CoQ10. I do. Now she is surrounded by hospice nurses who do not know what CoQ10 is. She had a quiet day but perked up in the latter part of the afternoon in time for a … Continue reading →

Posted in Blog, Photos | Tagged mother-daughter journey | 3 Replies

20a. Taking a Break: A Day in Brooklyn: At the Brooklyn Museum

Cerebral Jukebox Magazine Posted on March 16, 2013 by Sans SouciNovember 15, 2013

This has nothing to do with my mother and everything to do with my mother. Exhaustion. Day in and day out I have been on the phone, for months, taking care of my mother from afar and observing by feel the decline of her health. And mine. So I was under orders from everyone around me and the people who take care of my mom, to go out and enjoy myself. Easier said than done. I tried. But wherever I go I carry a large trunk filled with memories from the past, concerns for the future, and angst for the … Continue reading →

Posted in Blog, Photos | Tagged brooklyn, mother-daughter journey, nyc, photo journal | 2 Replies

Part 19: Garbage, Ice Cream, and Pneumonia

Cerebral Jukebox Magazine Posted on March 15, 2013 by Sans SouciSeptember 8, 2013

This photo was used for an ID button from the Brooklyn Army Base during the war Today is supposed to be my day off, a break, a little serenity. I’ll be going, hopefully to Brooklyn, where my parents grew up, to the Brooklyn Museum, my favorite Peruvian restaurant and to a show. My head and heart are floating somewhere. I go through motions and as I do life gnaws at me. The phone rang. That was it. The Hospice nurse called to say my mother has pneumonia and the crisis team was going back in to do round the clock … Continue reading →

Posted in Blog, Photos | Tagged mother-daughter journey | 3 Replies

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