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Cerebral Jukebox Magazine

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Tag Archives: nursing home

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266→Husband Journey: Solos

Cerebral Jukebox Magazine Posted on December 15, 2021 by Sans SouciDecember 19, 2021

Morgan Freeman in “Solos”   It’s happening more and more. I look at this blank blog page and don’t know where to go with it. So, I fall into my usual stream of consciousness and let ‘er rip. Sometimes I feel like I am getting there; to a manageable place where I can get up in the morning and face another day, head-on, in my new life. Other days I feel broken. I am. There is no denying that the kicking and screaming part of the mourning process is hard, damn hard. It’s uncomfortable, nauseating, fear-based, horrifying and dreadful. I … Continue reading →

Posted in Blog | Tagged aging, dementia, nursing home, Solos | 6 Replies

265→Husband Journey: Let Them Eat Cake

Cerebral Jukebox Magazine Posted on December 2, 2021 by Sans SouciDecember 15, 2021

I walked into Robert’s room with tote bags of must-haves in recognition of his birthday. Evan was waiting for a parking spot. I worked out the details over days on a sheet of paper: Bring the greeting cards a few people sent, bring our card, bring a little cake, bring something for the staff. Bring, carry, mask, stuff. I am trying to reconstruct what happened within a forty-five minute time frame a few days ago. So, here’s this guy in bed. He is my husband of forty-five years. “Hi, Rob!” Hi, Susie! “Happy Birthday!” It’s my birthday? “Yes, you are … Continue reading →

Posted in Blog | Tagged husband journey, nursing home | 9 Replies

264→Husband Journey: Cogent

Cerebral Jukebox Magazine Posted on November 29, 2021 by Sans SouciNovember 30, 2021

Sometimes you just don’t want to feel you have to do something. You just want to dump the shoulds and not think about anything. You don’t want to be reminded that you have a husband in a nursing home whose birthday is tomorrow. That because of a fall he has been out of the house for one year. That you have to go and make like everything is fine. Schmear the staff, deal with details. See the man in the bed. Diversion comes easily in these days of Covid: new variants are the unknowns out there that manifest like the boogey-man … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 2 Replies

263→Husband Journey: Get Better, Go Home

Cerebral Jukebox Magazine Posted on November 12, 2021 by Sans SouciNovember 29, 2021

  On this day, the day of our son’s birth, Evan took me to visit Robert. One has mixed emotions about days such as this due to timing, association of events, (in this case birthdays) and just plain anxiety. And because, due to rules, Evan was not permitted to come upstairs with me, he opted out and decided he wasn’t going to visit his dad without me.  There have been times when we have been able to circumnavigate the rules and go together but this time was a sensitive time: Evan could not do it. When I arrived upstairs, wearing … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 9 Replies

261.→Husband Journey: Arm-or

Cerebral Jukebox Magazine Posted on October 27, 2021 by Sans SouciNovember 1, 2021

    Monday, 10-25 I visited Robert. It was the usual drill. My friend was kind enough to drop me off and wait while I went on my journey. I don’t know if you know how very important it is to me to have that physical and moral support. Each time I go I wonder what I would find. I wonder if will be the last time. I sign in, fill out a form, have my temperature taken electronically, make my way down the long hallway and turn right at the elevator. I breathe deeply into my mask, ascend to … Continue reading →

Posted in Blog | Tagged aging, husband, husband journey, nursing home | 9 Replies

259.→Husband Journey: In Dreams Begin Responsibilities

Cerebral Jukebox Magazine Posted on October 10, 2021 by Sans SouciOctober 17, 2021

No, I haven’t been to see Robert. It has been over a week. He is as stable as he can be under the circumstances. I didn’t want to go alone, it is too much to bear. I needed someone to go with me but it wasn’t possible. When someone comes and waits in the car I feel like a child who has a left school at 3:00 PM with the day of learning behind me along with its anxieties. I will be swept off into security. The mixed emotions of a school day, and all the unknowns it brings is … Continue reading →

Posted in Blog | Tagged Covid-19, husband, husband journey, nursing home | 5 Replies

258.→Husband Journey: What He Said

Cerebral Jukebox Magazine Posted on October 2, 2021 by Sans SouciOctober 10, 2021

This is the photo that keeps me going when I visit Robert. I rewind my Universe about ten years.  He was not perfect, believe me he had his flaws, but he could walk. He could talk, He could work. He could shop. He could laugh. He could discuss. He could teach. He could listen to music of his choice. He could drive. He could feed himself. He could get into and out of bed independently. He could use a phone. He could. Now he can’t. Many people do not understand when I try to describe graphically, but with sensitivity, what … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 11 Replies

257.→Husband Journey: Absolutely

Cerebral Jukebox Magazine Posted on September 10, 2021 by Sans SouciOctober 2, 2021

  Last week I received a couple of robo-calls on different days from Robert’s nursing home notifying me that there were two covid cases found in employees in the building. This affects visitation, but in Robert’s case, as he is on “comfort care,” it does not. One friend from his former employment, a fellow teacher, spent time with him on Sunday. This past Wednesday, A & J, from Chicago, came to visit as part of their travels to see family. And so, I made a plan. We would pick them up from the Long Island Rail Road (they were staying … Continue reading →

Posted in Blog | Tagged husband journey, nursing home | 7 Replies

254.→Husband Journey: Cells (Blogging for Breast Cancer#21)

Cerebral Jukebox Magazine Posted on July 31, 2021 by Sans SouciJanuary 27, 2023

So, dear friends, it has been a while and there has been a lot going on which has stretched me thin. This will be a two-part blog, the second being under a new category, or rather an old one; please be patient. Today’s theme came to me after I took Robert’s little, old, flip phone and turned it on. It’s a small device that he had for many years, not wanting to give it up for anything more complicated. It booted up, still worked fine as it sat in my hand. A cell phone. A device used for linking people, … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 4 Replies

253.→Husband Journey: Moments

Cerebral Jukebox Magazine Posted on July 18, 2021 by Sans SouciJuly 31, 2021

When I visit Robert I hope for a spark, something to prove that he is still present. During my last visit I went into my usual soliloquy: I do my late night TV-type monologue and wonder how Johnny Carson survived for so many years. It ain’t easy. The visitor feels compelled to keep a conversation going when there is no one to converse with. Robert hasn’t initiated conversation in months. Apparently, that part of his brain is unable to latch on to the words he might want to say. He doesn’t ask for anything. He is no longer moved for visits. … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 5 Replies

251.→Husband Journey: How to be a Hero

Cerebral Jukebox Magazine Posted on July 9, 2021 by Sans SouciJuly 11, 2021

Friends, many of you have told me that I am your hero! That I inspire you. That I give your courage. That you can’t believe I am going through the second major loss in my life since November when my 102-year-old mother passed. And that shortly after, Robert had his first major fall and has not been home since. You’ve followed my blogs. You’ve left comments privately and publicly. You don’t know  “how I do it.” Here’s a window into my world: Prepare yourself by losing your first spouse at age 26 after years of his illness, his going in … Continue reading →

Posted in Blog | Tagged be a hero, husband, husband journey, nursing home | 7 Replies

250.→Husband Journey: Missing

Cerebral Jukebox Magazine Posted on July 8, 2021 by Sans SouciJuly 11, 2021

So, here we are, room 213B. Robert’s room looks out on the nurse’s station. The nurse’s station keeps an eye on him as he fell out of bed three times in the past.  I caught it at a moment when the hustle and bustle had died down. Where was everyone? It is not quiet, never quiet. There is always beeping or chatter or laughing, always a din that lives in the walls and invades sleep and rest, but, eventually, the patients become immune, deafened like they’ve never heard it and the visitor’s nerves remain jangled, and will never get used … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 19 Replies

249.→Husband Journey: Distraction

Cerebral Jukebox Magazine Posted on July 1, 2021 by Sans SouciJuly 11, 2021

  I live on and off the TV screen In the evenings to escape from the days filled with phone calls and fear, I unplug and binge-watch something, anything, as long as I am hooked. It is my safe time: daily life facts are buried, what-ifs and anxiety are temporarily left behind. I have lost my connection to reality moving into the world of the royals (The Crown), Ginny and Georgia (incredible story)…I watched the new Mad About You and wondered what happened to Helen Hunt…Apparently she had been in a car accident…The Kominsky method made me laugh. And there … Continue reading →

Posted in Blog | Tagged coping, husband, husband journey, nursing home | 3 Replies

248.→Husband Journey: Going

Cerebral Jukebox Magazine Posted on June 28, 2021 by Sans SouciJuly 11, 2021

Just to tell you. Robert is eating less than 50% of what is served, and sometimes nothing at all. The facility wanted to send him to the ER for hospital admission for a feeding tube. It ain’t gonna happen. I told the nurse with a witness on the line: Do Not Resuscitate, Do Not Intubate. No feeding tubes going down the nose and into the stomach. No. No. I repeat: NO. He is on “compassionate care.” He is to be made comfortable. If he wants to eat, he eats. If he doesn’t want to, he doesn’t have to. Give fluids, … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 20 Replies

247.→Husband Journey: Away With Words

Cerebral Jukebox Magazine Posted on June 22, 2021 by Sans SouciJune 23, 2021

photo by Alan Teller I used to be a more prolific writer but lately I have been distracted by all that is going on around me and I thank those friends who have reached out. It has not been easy. But you knew that. As promising as I thought the visit was a few weeks ago, as hopeful as I was that language would be somewhat functional, that is how opposite things are now. Evan and I have had two visits, one has been blogged about in the previous post, and one on Father’s Day.  We brought lovely flowers and … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 9 Replies

246.→Husband Journey: Once Was

Cerebral Jukebox Magazine Posted on June 16, 2021 by Sans SouciJune 22, 2021

    Last Thursday evening was uplifting: it was the C.C.N.Y Alumni Service Award ceremony on Zoom. After the minutes were gone over and approved, six alumni members and two staff members received recognition. Robert was from the oldest class, 1969; his bio was read by another alumni member. I had no idea how the introduction would work and I hadn’t prepared an acceptance speech, so I, a speech major, did it on the fly, and augmented the bio which was based on Dalton’s nomination for the Architecture School Award. I went on to speak about Robert’s incredible amount of … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 9 Replies

245.→Husband Journey: Air Conditioning

Cerebral Jukebox Magazine Posted on June 7, 2021 by Sans SouciJune 17, 2021

    I hadn’t had a FaceTime visit with Robert  in a week, and yes, I felt bad, but I have appointments and calls and it’s time to take care of my own health. Some big stuff came up that scared me, filled me with dread and a pounding heart and I need to follow up. It’s been very strange since Mercury went into Retrograde. It always happens: Miscommunications, broken stuff, missing stuff, weird stuff going on with electronics. So I will begin my post with the air conditioner story. The bedroom air conditioner might be eight years old and … Continue reading →

Posted in Blog | Tagged air conditioner, husband, husband journey, nursing home | 13 Replies

244.→Husband Journey: Anniversary in a Nursing Home

Cerebral Jukebox Magazine Posted on May 31, 2021 by Sans SouciJune 8, 2021

  May 30, 2021 45th Wedding Anniversary My day began with coffee and a sign I didn’t sleep well last night, my mind was racing and thinking ahead, bathed in a sea of heart palpitations and high anxiety. Why was I so uncomfortable? I had the visit well planned: I picked up cookies for the staff and cookies (bite sized) for Robert. He loves those chocolate Quadratinis. I picked up a bouquet of flowers for Robert, for next to his bed, and two more bouquets for the staff, for the reception area and for the nurse’s station. People in the … Continue reading →

Posted in Blog | Tagged anniversary, husband, husband journey, nostalgia, nursing home | 14 Replies

242. →Husband Journey: Bread and Brain

Cerebral Jukebox Magazine Posted on May 20, 2021 by Sans SouciMay 24, 2021

    How does one divert oneself when life is tough? Dive into learning a new skill or resurrect an old skill. Focus, yes it is difficult, on something other than the pain that drags you down and makes your stomach quake. Think of pita, ciabatta, loaves  of warmth; some of which might take more than a day to prepare and bake. That keeps you busy. I have been consumed by a recent food section of The New York Times. I bought a bread baking book. I put my hands in flour and wish it was Moroccan sand or a … Continue reading →

Posted in Blog | Tagged dementia, husband, husband journey, nursing home | 6 Replies

241.→Husband Journey: Awards

Cerebral Jukebox Magazine Posted on May 19, 2021 by Sans SouciMay 20, 2021

        Dear Robert: I have the privilege of officially notifying you that the Alumni Service Awards Committee unanimously voted to confer on you the 2021 Alumni Service Award. Congratulations! This award recognizes your ongoing and outstanding service to CCNY and the Alumni Association. This award is presented at our Annual Alumni Meeting – this year scheduled for Thursday, June 10, 2021. Note that this meeting will be held online (via Zoom) due to the continued challenges posed by the coronavirus pandemic. While we are disappointed that we are unable to gather to celebrate in-person, we did not … Continue reading →

Posted in Blog | Tagged husband, husband journey, nursing home | 6 Replies

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