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Cerebral Jukebox Magazine

Susan Kalish on Wordpress.org

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Tag Archives: ocular migraine aura

19. Life Is A Journey But This Is A Trip: The Migraine Morph

Cerebral Jukebox Magazine Posted on July 15, 2022 by Sans SouciJuly 15, 2022

From the “I Tried Everything ” department, my last medications for a number of years, were  self-administered injections of aimovig, then Emgality with a co-pay of almost $160/month. They stopped working. The incidents of episodes was creeping back up toward chronic. It was time for a change. I had my first infusion which requires me to go every three months. When I arrived home after the first infusion, I got an ocular migraine. I told myself the medicine needed time to circulate and to give it a chance. That was last Tuesday. It is over a week later and I … Continue reading →

Posted in Blog | Tagged migraine, ocular migraine, ocular migraine aura | 2 Replies

17. Life Is A Journey But This Is A Trip: Yes, I Still Get Migraines

Cerebral Jukebox Magazine Posted on November 7, 2021 by Sans SouciJuly 14, 2022

    Some of you have asked: Yes, I still get migraines. If you recall at the beginning of my posts, they really kicked in about ten years ago when I began caregiving for my mother. However, what I didn’t realize was that even before then, I was having these occasional weird vertigo episodes. What I didn’t know at the time and for some time later, that this kind of vertigo is attributed to migraine, not to a vestibular component. I have been tested about four times and there was never a correlation. At least with a vestibular component, there … Continue reading →

Posted in Blog | Tagged migraine, ocular migraine aura | 6 Replies

16. Life Is A Journey But This Is A Trip: The Nerivio Device Report (3)

Cerebral Jukebox Magazine Posted on January 16, 2020 by Sans SouciJuly 14, 2022

The migraine report continues. Let me set the mood: this morning at around the time I was going to eat breakfast, I had a solid gold spot in my vision that looked more like a retinal migraine except is was perceived in both my eyes making it a brain spasm. It dissipated. A couple of hours later, back at the dining room table as I was opening a package, BOOM, without warning, a standard issue of ocular migraine. It was quick to reach my perception and by the time I got to my Nerivio device I was about 7 minutes … Continue reading →

Posted in Blog | Tagged ocular migraine aura | Leave a reply

15. Life Is A Journey But This Is A Trip: The Nerivio Device Part Deux

Cerebral Jukebox Magazine Posted on January 13, 2020 by Sans SouciJanuary 16, 2020

  A few hours after yesterday’s blog was published, I was sitting at my computer and sensed the beginning of an ocular migraine, the third one of the week.  There was a time I was getting them everyday and even several times a day. For years I have been drawing circles around dates on piles of calendars, tracking these events, trying to figure out links, causes, ties of some kind, but nothing felt consistent, it just, well, happened. Happened on its own terms. I have even thought that this condition could be due to a virus that was lingering and … Continue reading →

Posted in Blog | Tagged migraine, Nerivio, ocular migraine aura | 2 Replies

14. Life Is A Journey, But This is A Trip: An Early Review of Nerivio

Cerebral Jukebox Magazine Posted on January 11, 2020 by Sans SouciJanuary 13, 2020

  Here’s the score, kids. I paid $100 for this device which is good for about 10 treatments. How to dispose of it when done is enigma because no one has responded to my query. Anyway … I had my first ocular migraine of the week on Tuesday. The usual: a slight hint of a pop in one eye leads to an eventual blind spot. Here was my chance! Pull the goods out of the box! Stick a device on my arm. Fight with the armband and adjust it over the device to keep it flush to my arm. I … Continue reading →

Posted in Blog | Tagged migraine, ocular migraine aura | 1 Reply

13. Life Is A Journey But This Is A Trip: Migraine Continues

Cerebral Jukebox Magazine Posted on January 4, 2020 by Sans SouciJanuary 11, 2020

What a typical ocular migraine looks like   Let me begin here as we are about to revisit our old nemesis, the migraine. Here’s a tip: if someone you know gets migraines and mentions they have one, NEVER say, “oh, are you STILL getting those?” Because … ✻ you may get a pie in the face ✻ it shows how much you don’t get it Migraine is an ongoing neurological disorder, it doesn’t go away over night—if ever. It is a hereditary issue where neurological signals get bolluxed, in my case, the occipital lobe, the vision center, has psychedelic trips … Continue reading →

Posted in Blog | Tagged migraine, ocular migraine aura | 7 Replies

12. Life Is A Journey But This Is A Trip: Still Looking for Relief

Cerebral Jukebox Magazine Posted on September 28, 2019 by Sans SouciJuly 14, 2022

    The return of the migraine. I sometimes think that the more a migraine sufferer prevents an episode, the more it comes back to get rid of itself. It is almost like it has to happen for some clearing out of a buildup. Is it electrical impulses? Stress? Does it manifest as anxiety one minute and a headache the next? I know! Let’s blame it on the government! The fires in the Amazon! The changing climate! You know the list. I had never been a big vaper and certainly what I was “vaping” was nothing like what we’ve been … Continue reading →

Posted in Blog | Tagged migraine, ocular migraine aura, vertigo | Leave a reply

10. Life is a Journey, But This is a Trip: It’s Baaaaack!

Cerebral Jukebox Magazine Posted on September 17, 2019 by Sans SouciSeptember 18, 2019

Here we are back in the Migraine Corral. I was doing well, really well for a time. I began taking Medical Marijuana but was more of a user of CBD oils in hopes of controlling my migraine issues. MIGRAINE. For those who follow my migraine saga, you know this has been a big deal with my health for well over eight years, and though I have always had it, actually since childhood, it morphed over the years into stages. While at work I would often take six extra strength Bufferin to get through the day. The pain headaches were terrible. … Continue reading →

Posted in Blog | Tagged CBD oil, migraine, ocular migraine aura, vertigo | 2 Replies

The Weirdness of Migraine: The First Day Of Retrograde Whammy

Cerebral Jukebox Magazine Posted on July 8, 2019 by Sans SouciJuly 8, 2019

A happy Monday to all. I am going to share this with you so you get an idea of what a migraineur experiences.   I was a very young child who had “sinus” and vertigo episodes. I had never-ending re-occurring headaches of debilitating pain. My mother was always told that is was “sinusitis.” No one knew that little kids could get migraine. It accompanied me throughout my school years, during camp, at home, away. But it was not just a headache. It manifested in my gut, as anxiety, and pain and often couldn’t hold food down.   I don’t know … Continue reading →

Posted in Blog | Tagged migraine, ocular migraine aura | 6 Replies

Counting Cures Before They’ve Hatched

Cerebral Jukebox Magazine Posted on July 27, 2014 by Sans SouciJuly 27, 2014

I had a great health week last week; I managed to make it from Saturday the 19th after two ocular migraines for almost one week without any form of migraine. I had begun a plethora of methodologies to eradicate my almost two years of intrusive visual migraines. Therapeutic massage and acupuncture along with a Chinese herbal tonic were regular. And don’t forget all the Botox injections at the neurologist. I added the Cephaly machine, Gunnars’ computer glasses, a regimen of magnesium and vitamin B12, and “cell salts.”  (see this blog: Kicking Migraine’s Ass). With all the intervention I figured I … Continue reading →

Posted in Blog | Tagged migraine, ocular migraine aura | Leave a reply

Kicking Migraine’s Ass

Cerebral Jukebox Magazine Posted on July 24, 2014 by Sans SouciJuly 25, 2014

I’ve been at war with migraine headaches of all kinds and have been trying everything I can to win. The neurologist injected me with six vials of Botox in my head, shoulders and neck; that’s three large hypodermics. And I was still getting ocular migraines. I have been going for acupuncture twice weekly, I took two week’s worth of Chinese herbs which I deemed my daily dirt martinis. The headaches persisted. I was getting head “aches” with pain and the persistent, pit bull headaches of the not painful ocular migraines which usually leave in thirty minutes. Sometimes they would come … Continue reading →

Posted in Blog, Links | Tagged migraine, ocular migraine aura | 3 Replies

The Aura Continues…Blame It On The Mafia

Cerebral Jukebox Magazine Posted on June 30, 2013 by Sans SouciJuly 14, 2014

      Curiouser and curiouser.  I am going back to the topic of ocular migraine aura. (see this blog) I have been keeping track of the episodes and becoming disconcerted. After a significant lessening of occurrences for a few months, and the taking of Petadolex which appeared to be working, the auras are coming back in full force. Sometimes two, three times in a day or in an hour! I consider a good day just dealing with gold lights zooming through my field of vision. It is the strangest feeling and the strangest event. What I think is so disconcerting … Continue reading →

Posted in Blog | Tagged health, migraine, ocular migraine aura | 2 Replies

Part 18b: The Aura

Cerebral Jukebox Magazine Posted on March 14, 2013 by Sans SouciJuly 14, 2014

                       The weirdness of ocular migraine aura Since September, around the time my mother began to become unstable, I have been having episodes of ocular migraine aura. Almost all of the “episodes” have been in my home and most seem to have a light trigger. It has been triggered as well by computer screens and cell phone screens. The “aura” usually begins to present as a small blind spot that grows into a black C-shape with gold zig-zags. it starts out tiny and then expands, so that perception is that something from afar is approaching. The C-shape can face … Continue reading →

Posted in Blog, Photos | Tagged health, migraine, mother-daughter journey, ocular migraine aura | 3 Replies

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